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= **Cystic Fibrosis ** =

A diagnosis of cystic fibrosis (CF) can be a scary event. This website was designed to help get patients and their families informed about all important aspects of CF. Please use the pages in the sidebar to navigate the site and better understand this disease.

To the Parents:
Shannon and Ben, it is very likely your son Ryan has cystic fibrosis. The reason you two do not have cystic fibrosis is that you are carriers of it, as cystic fibrosis is recessive. Therefore, you both have an allele for cystic fibrosis. However, you still have one healthy cystic fibrosis transmembrane conductance regulator gene (CFTR gene) and still produce the amino acid, phenylalanine. What this means will be explained further throughout the site. If you chose to have other children together, you will have a one in four chance of having another baby with cystic fibrosis.This site has been provided to help and guide you in understanding cystic fibrosis, so that you can, ultimately, assist your son in having a long and happy life.

Here are some helpful sites:
CF Information from Mayo Clinic: [] CF Information from Medline Plus: [] Cystic Fibrosis Foundation: @http://www.cff.org/